Unpacking Grief: The Ball & The Box Analogy

“To live in hearts we leave behind is not to die.” - Thomas Campbell

“To live in hearts we leave behind is not to die.” - Thomas Campbell

Grief is a tricky emotion. 

It can follow you around like a dark cloud, turning your world to gray and obscuring everything around you. And just when you think the fog of your grief may be lifting, a random thought or memory can trigger a sense of overwhelming sadness all over again. 

Whether you are dealing with the loss of a loved one or grieving your former self due to chronic illness or cancer— we all grieve in different ways.  

Recently, Twitter user Lauren Herschel shared an analogy that explains how grief changes over time and why it often bubbles up randomly.

Herschel drew a box with a ball inside. On the left side of the box is a red “button.” She explained that “When grief is new, the ball takes up most of the box and is constantly hitting the button, which causes pain, over and over again.”

The pain is fairly constant in the beginning. “Because the ball is huge, you can’t move the box without the ball hitting the pain button. It rattles around on its own in there and hits the button over and over. You can’t control it – it just keeps hurting. Sometimes it seems unrelenting.” 

Herschel explains, “Over time, the ball shrinks — but every now and then, it still hits the button. Maybe you see someone who reminds you of your loved one. Maybe a certain song plays on the radio. Maybe it comes out of nowhere.”

One of the hardest parts about dealing with grief is accepting the fact that the feeling never really goes away. The feelings may lessen in intensity, but the sense of loss is always there. Herschel goes on to explain, “For most people, the ball never really goes away. It might hit less and less, giving you more time to recover between hits, unlike when the ball was still giant-sized.”

There is no timetable for dealing with your grief. It can take time for the ball in your box to shrink. You shouldn’t feel rushed into getting “over” your grief, and you definitely shouldn’t feel judged for grieving, no matter how long ago it started.

I’ve learned that immense grief is often the price we pay for tremendous love. Grief comes in waves. Sometimes our emotions are calm, other times the waves of loss bring us to our knees. All we can do is learn how to ride the waves of emotion. 

There is no moving on after loss, there is only moving forward.

The reality is that we don’t forget, move on, and have closure. Instead, we honor, we remember, and learn to celebrate in a new way.

Deep grief sometimes is almost like a specific location, a coordinate on a map of time. When you are standing in that forest of sorrow, you cannot imagine that you could ever find your way to a better place. But if someone can assure you that they themselves have stood in that same place, and now have moved on, sometimes this will bring hope.
— Elizabeth Gilbert, author of Eat, Pray, Love

Source:

Click here to view original Twitter post

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Laughing Through the Pain: Funny Cancer Memes

If you can laugh in the face of adversity, you’re bullet-proof. - Ricky Gervais

If you can laugh in the face of adversity, you’re bullet-proof. - Ricky Gervais

I’m a little under a month away from my next scan.

 It’s a big scan because if it is clear, I will be celebrating being 2 years cancer-free on May 1st, 2020.

 As soon as February began to fly by, I started to notice a shift.

The nagging “scanxiety” is back.

I feel a sudden tightness in my throat as my appointment creeps closer on the calendar.

Countless tests and endless waiting are some of the most difficult and mentally exhausting parts of cancer treatment and remission.

I try to look at my scan as another hurdle I must pass on my journey to long-term remission.

I can’t change the fact it’s coming and I can’t avoid it.

But I’ve learned that it’s best not to focus on my scan until it’s right before me.

Working myself up over the what-ifs and possibilities of relapse won’t help.

I do best mentally when I stay productive and distracted with work, housework and my kid’s activities so that I don’t start to dwell on all the possible outcomes of my next visit.

Trying to find a little humor in the situation always helps too.

One thing I like to do is keep a collection of memes on my phone so that when I’m feeling a little down or anxious, I can quickly scroll through them for a little pick-me-up.

Laughter really is the best medicine!

So, I thought I’d share some funny memes about cancer and chronic illness to hopefully brighten your day as much as they did mine.

Finding Joy in the Journey

“We cannot cure the world of sorrows, but we can choose to live in joy.” —Joseph Campbell

“We cannot cure the world of sorrows, but we can choose to live in joy.” —Joseph Campbell

JOY.

How can three letters be so hard to find?

Most of us try hard to find joy every day.

But for many of us, our joy is hidden under layers of heartache and past hurts.

Our joy has been pushed to the back burner to make room for other’s needs.

Our joy has been cast aside to make room for the passions of others.

Our joy has been linked to some future state we are always striving for but can never fully reach.

What if we have been searching for joy in all the wrong places?

This picture hangs above the desk in my office as a reminder that my journey will lead to many unexpected places.

I may experience tremendous loss, heartache, and defeat.

But JOY can always be found in the journey if I know where to look.

Take the word JOURNEY.

If you look closely you will see the word JOY is hidden among the letters, too.

JOURNEY.

Just like life, the word JOY can only be found once you complete the word JOURNEY.

This helps remind me that with perspective often comes the joy we have been longing to find.

Within the word, JOURNEY is also the word URN.

Reminding me that all our bodies are vessels and we are all on the same journey. We will all eventually return to the ashes of creation that formed us.

The string reminds me that our life is a tangled web of possibilities.

The bicycle made of silvery-blue string reminds me that our journeys are what we make them. We can let life knock us around or we can choose to grab the wheel and forge our own path or even blaze a new trail.  

No matter where our journey leads, we must always try to find a thread of silver lining —for where there is hope, joy will soon follow.

Perhaps our journey isn’t so much about the destination. It’s about realizing and rediscovering the joy we have been searching for all this time was there in our hearts all along.

Unconditional Love is All You Need

“To give and not expect return, that is what lies at the heart of love.” – Oscar Wild

“To give and not expect return, that is what lies at the heart of love.” – Oscar Wild

Unconditional.

It’s the type of love that is hard to find.

It’s the type of love that is sometimes hard to give.

It’s the love that is sometimes even harder to receive.

It’s the love that is not just there for the pretty parts,

It’s the love that’s by your side no matter what.

It’s loving someone beyond your limits and theirs.

It’s loving without pause,

It’s compassion without question,

 It’s not loving you “because”, “if” or “when,”

 It is loving you “anyway”, “even though” and “always.”

Music Has the Power to Heal & Connect Us All

What if hospital bands came with special perks for patients?

What if hospital bands came with special perks for patients?

Music has healing power. It has the ability to take people out of themselves for a few hours.
— Elton John

Getting diagnosed with cancer feels like you were just admitted to a special club you never wanted to join.

But what if that were different?

What if the hospital bands we are given when we are admitted come with special perks like meal discounts, free parking and other local perks?

When you’re going through treatment, you have a lot of time to sit and think while you are getting your infusions. I liked to tell myself during treatment that just because my body may be stuck in this hospital bed or infusion chair, my mind can still grow, and my heart can dream BIG.

One thing I liked to do during this time was to listen to music or podcasts to escape my present reality.

Music has the power to heal and connect us.

Do you remember the days when you used to spend hours waiting for your favorite song to come on the radio, just so you could record it on a tape?

Who else remembers sitting for hours at your computer downloading new music to craft the perfect mixed CD?  

Friends and family that know me well, know that I love sharing my mixed CDs and playlists AND I have a sound track to match just about everything.

So, in honor of Valentine’s Day and to say thanks for all your love and support, please feel free to check out and download my shared playlist on Apple Music, “Love to Heal.”

Click here to play my shared playlist.

Let me know in the comments, what songs you like to listen to during treatment or what song you would add to this mix!

 

 

A World Without Cancer is Possible

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Your time is up.

You hear your name being called.

Your number’s up.

You’re next.

How did you get here?

This is a mistake.

This HAS to be a mistake.

It can’t be real.

Cancer?

Three words you never thought you’d NEVER hear attached to YOUR name.

But here you sit in the oncologist’s office waiting to learn your fate.

What treatment you should take.

The possible side-effects.

Calculating your odds of survival.

How did this happen?

Why?

It is said that cancer doesn’t have a face until it’s yours or someone you love.

You never think it’s going to be you or your loved one until it unfortunately is.

Cancer knows no borders.

It does not care if you have money to pay for treatment.

It does not care if you were just married.

It could care less that you are pregnant or just had a baby.

It does not matter that you are mother or a father.

It does not care that you are only a child.

Cancer is unfair, untimely, and a great uncertainty we all must face.

2 years ago I was diagnosed with Stage 3 Hodgkin’s Lymphoma two weeks before Christmas.

I was fortunate to be able to take part in a clinical trial at Northwestern where I had access to one of the latest cancer treatments: immunotherapy.

To my surprise, just 6 months after a stage 3 cancer diagnosis, I was in remission and I STILL AM today thanks largely to the advanced immunotherapy/chemotherapy treatment I received at Northwestern’s Lurie Cancer Center.

I believe in a world without cancer.

Do you?

February 4th, 2020 marks the 20th anniversary of #WorldCancerDay. Let us help raise awareness so that we can help transform cancer from deadly and treatable to entirely preventable.

Human colorectal cancer cells treated with a specialized drug combination under study for a cancer therapy. Cell nuclei are stained blue; the chromosomal protein histone gamma-H2AX marks DNA damage in red and foci of DNA replication in green.Created…

Human colorectal cancer cells treated with a specialized drug combination under study for a cancer therapy. Cell nuclei are stained blue; the chromosomal protein histone gamma-H2AX marks DNA damage in red and foci of DNA replication in green.

Created by Yves Pommier, Rozenn Josse, 2014

Source: National Cancer Institute @NCI

Click here to learn more about my treatment and the clinical trial I took part in at Northwestern’s Lurie Cancer Center.

Visit the American Cancer Society to learn more about immunotherapy treatment options.

#IAmAndIWill #cancersurvivor #worldcancerday #lymphoma

 

 

 

 

The Synchronicity of Stepping Out Of Your Comfort Zone

“Strength does not come from physical capacity. It comes from an indomitable will.” ~Mahatma Gandhi

“Strength does not come from physical capacity. It comes from an indomitable will.” ~Mahatma Gandhi

Me and my new lil’ ponytail rocked our first yoga sculpt class today.

It might seem silly to you to celebrate such a thing but for me taking a group fitness class is a HUGE step outside of my comfort zone.

 I’ve been doing light yoga, stretching and walking to help strengthen my body after treatment but this was the first time I have combined cardio, weights and yoga.

 I’ve been wanting to try this yoga studio for over a year, but my anxiety always got the best of me.

What if I can’t keep up?

I don’t really know all the positions that well. I’ll probably feel lost.

 I told myself it was better to practice my yoga at home until I built up more confidence. But yesterday, a friend asked me and few others to join us for this class because the studio offers a one-week free trial. I figured this was sign I NEEDED to go to this class.

 Right before class started, as I waited for my friend, my anxiety crept back in.

What if I get dizzy and have to stop?

What if I can’t do the weights?

Will my heart be able to handle this type of workout?

I hope no one notices me struggling.

 As class began, our instructor began talking about the Super Bowl and how our mindset can be what helps us or stops us from achieving our goals.

I decided that for this one hour I was going to simply try to challenge myself. I wanted to push my body to it’s limit to remind myself of my strength. I was going to avoid judging myself if I had to stop or take it easy.

 I ended up surprising myself with how well I was able to keep up despite my current health challenges. For one hour I got to forget about the port in my chest as I powered through the Standing Vinyasa Flow.

 Nearing the end of the hour, I felt the urge to check my apple watch as I grabbed a few sips of water.

 11:11 was the time.

 I smiled and looked at my friend who said, “This just keeps going. How much time is left?”

I laughed and told her, “it’s 11:11. Almost done!”

The Meaning of Synchronicity

Synchronicities of seeing repeating numbers like 11:11 when we check the time remind us to stop and observe our thoughts because our thoughts have the power to shape our reality.

The thoughts we think and the words we say are powerful. They can build us up or destroy us. They can lead to us achieving incredible things or they can hold us back from reaching our true potential.

This reminded of me when I played volleyball and how our coaches always drilled into our heads never to focus on the score.

We had to always play like it was 0 to 0.

We always had to believe we had a chance to make a comeback no matter how many points we were down.

The same is true in our lives. No matter what challenge we our facing: illness, change or loss, let us remember to focus on the possibilities of what could go right instead of worrying about what could go wrong.

 

Facing Our Shadow Side for Healing & Personal Growth

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How can I be substantial if I don’t cast a shadow? I must have a dark side if I am to be whole.
— Carl Jung

Your shadow.

It’s always standing right behind you, just out of view.

Our shadow is our constant companion, yet it’s only fully visible when are standing in direct light.

Each year on February 2nd, we celebrate Groundhog Day, a tradition based on the superstition that determines the ending of winter by whether or not a groundhog sees its shadow.

For the groundhog, running from its shadow means a longer winter season. Similarly, when we fail to recognize and accept our shadow self–or our personal blind spots–we can unnecessarily prolong our suffering and unhappiness.

This tradition made me wonder, what can we gain by facing our shadow side— the things we believe are inferior or unacceptable about ourselves?

How Our Deepest Wounds Become Our Shadow

The shadow is a term coined by psychologist Carl Jung, and it refers to our deepest wounds. The wounds that have us believing we're flawed, unlovable, undeserving people.

Our psychological wounds are often created in childhood, but can sometimes develop later in life. Perhaps you were bullied or experienced a traumatic life event that created a wound. Other times, these wounds are cultural. They develop from prevailing social beliefs, such as the way money is often tied to self-worth.

So, what do we do with the messy, ugly thoughts and urges that just don’t fit with social expectations?

We deny and hide them, and they form our shadow side. Every single human being possesses this buried aspect of personality. As poet Robert Bly says in A Little Book of the Human Shadow, the child puts all of these unwanted parts into an invisible bag and drags it behind him. This repression of unwanted parts creates what psychologist Carl Jung called the personal shadow.

Everything we deny in ourselves—whatever we perceive as inferior, evil, or unacceptable—becomes part of our shadow self. Anything that doesn’t fit with our chosen conscious beliefs about ourselves gets put into this dark side of our personality.

In psychological terms, our shadow refers to everything we can’t see in ourselves. The shadow is the “dark side” of our personality because it consists mainly of primitive, negative emotions and impulses like rage, envy, greed, selfishness, and the desire for power.

The Risk of Ignoring Your Shadow

The ancient Greeks understood the need to honor all of the parts of the psyche. For them, these parts were worshiped as autonomous gods and goddesses. The Greeks knew a god or goddess you ignored became the one who turned against you and destroyed you.

Jung believed our personal shadow is our disowned self. This shadow self represents the parts of us we no longer claim to be our own, including even some of our positive qualities. However, these unexamined or disowned parts of our personality don’t go anywhere. Although we deny them in our attempt to cast them out, we don’t actually get rid of them.

What Happens When You Repress Your Shadow

Every human being has a shadow side. Most of us go to great lengths to protect our self-image from anything unflattering or unfamiliar. So it’s often easier for us to observe someone else’s shadow before acknowledging our own shadow or negative behavior. However, whatever qualities we deny in ourselves, we will also find in others.

In psychology, this is called projection. We project onto others anything we bury within us. If, for example, you get irritated when someone is rude to you, there is a good chance you haven’t owned your own rudeness.

Any part we disown within us, eventually turns against us. Our personal shadow represents a collection of these disowned parts. Problems happen because our shadow side operates on its own, without our full awareness.

Remaining unconscious of our shadow self, often hurts our relationships with our spouses, family, and friends, and also impacts our professional relationships and leadership abilities.

We do things we wouldn’t voluntarily do and later regret. We say things we wouldn’t say. Our facial reactions express emotions we don’t consciously feel. We get triggered by someone else’s actions because deep down we are denying that behavior in ourselves.

Repressing our negative aspects can lead to physical illness, depression, anxiety, divorce, insomnia, chronic pain and even an untimely death.

This is because pushing away parts of our true selves is stressful, exhausting and uses up energy that we need to live healthy lives.

Benefits of Jungian Shadow Work

Dragging around this invisible bag of stuff behind us is physically draining. It is exhausting work to continually repress all the parts of ourselves that we don’t want to face. Mentally suppressing our negative aspects can also lead to physical pain and disease.

With Jungian shadow work, you can free a tremendous amount of energy you were unconsciously investing in protecting yourself. This can improve your physical, mental, and emotional health.

For example, Dr. John Sarno has healed thousands of patients of chronic back pain by helping them acknowledge the repressed rage in their unconscious. Dr. Sarno’s book reveals how many painful conditions-including most neck and back pain, migraine, repetitive stress injuries, whiplash, and tendonitis are rooted in repressed emotions, and shows how they can be successfully treated without drugs, physical measures, or surgery.

Working On Our Shadows

It is believed that our shadow side is a reflection of our power, honesty and passion. If we want to feel whole and balanced and to continue growing and truly heal, we must begin by making friends with our negative side.

The first step in shadow work is to become aware of ongoing patterns in your life. Do you consistently encounter the same problems or experience recurring feelings? These patterns can help to highlight your shadow.

Common shadow beliefs include:

  • I am not good enough.

  • I am unloveable.

  • I am flawed.

  • My feelings are not valid.

  • I must take care of everyone around me

  • Why can't I just be normal?

Exploring your shadow can lead to greater authenticity, creativity, energy, and personal clarity and happiness. Shadow work can bring you inner strength and a greater sense of balance, making you better equipped to take on life’s challenges.

“The privilege of a lifetime is to become who you truly are.”-Carl Jung

Jungian therapy teaches that self-awareness and acceptance are the keys to balancing the conscious and subconscious aspects of ourselves.

One way we can start embracing our shadow side is by becoming more consciously aware of our thoughts and interactions with others.

By becoming more mindful of our thoughts we can learn to simply observe and not react to situations that previously triggered negative behavior or the shadow aspects of ourselves.

A good way to practice being more mindful is to simply:

Treat your thoughts as if they are clouds floating by in the sky. Let them come and go but do not judge or try to fight them. Simply accept and appreciate them for what they are.

Facing our shadow is rewarding, yet challenging life-long work. A big part of healing and finding more peace is doing shadow work. Once you become aware of how your shadow beliefs are holding you back from living your fullest life, you can consciously change your behavior and, in doing so, change your life.

Sources:

A Definitive Guide to Jungian Shadow Work: How to Get to Know and Integrate Your Dark Side” Scott Jeffrey

A Little Book on the Human Shadow Robert Bly

The Mindbody Prescription: Healing the Body, Healing the Pain John E. Sarno M.D. 

 

 

Ponying Up: Coping with Hair Loss & Regrowth

“Be not afraid of going slowly, be afraid only of standing still.” - Chinese Proverb

Be not afraid of going slowly, be afraid only of standing still.” - Chinese Proverb

It’s not just a ponytail.

From my roots to my wiry ends,

Each strand on my head has survived to tell quite a tale.

It took two full years to get to this point.

Through many cycles of death and regrowth.

Wispy and wild, to shaved mullet and the ‘mom bob’,

No choice but to make peace with my changing appearance.

The mirror, both friend and foe,

Reflecting just how much everything has changed.

Strands turned into clumps;

Clumps soon became handfuls.

Losing a little bit of myself with each broken strand.

“It’s just hair.”

I tried to reassure myself.

“It will grow back.”

Healthier, thicker, maybe even a different color?

“All this hair loss means the chemo is really working.”

I tried hard to find the silver lining.

Not having to pay to get my hair colored or highlighted.

Not having to spend hours dying, styling and fussing with it.

All the time and money I saved.

My hair is a crowning achievement of womanhood.

Losing my hair meant saying goodbye

To the version of ME

I had known my entire life.

Accepting the painful reality,

The cancer patient in the mirror is really me,

Head wraps, scarves and beanies,

Painting in my eyebrows, ensuring my wig’s always secure.

How I longed to be able to run my fingers through my hair without the fear of falling clumps.

How I missed being able to tie my hair back and let it down after a long day.

How I forgot the feeling of my ponytail swaying with my every move.

 No, it’s not just another ponytail.

Every inch is a marker of progress and a sign of resilience.

From the turmoil of what was; the new me is taking shape.

After unimaginable pain and destruction,

Change has taken root.

It’s not just another ponytail.

Each millimeter of hair growth,

A tangible symbol of healing and progress.

One step closer to long-term remission,

Transforming my treatment into a distant memory.

It’s not just a ponytail.

It’s more than just hair.

It’s a symbol of hope,

Reminding us that our comeback

Will always be greater than our setback.

The Flip Side of Fear

Sometimes you have to do it afraid. But what if the flip side of fear is where we meet our true power?

Sometimes you have to do it afraid. But what if the flip side of fear is where we meet our true power?

“It’s just a little bump.” 

“It’s probably nothing.”

Try as you might— you can’t shake the feeling that it could be something more. Something serious. Hands shaking you finally make the appointment. You tell yourself, “Better to be safe than sorry.”

Deep down you know your worst fear could be coming true. 

You could have cancer. 

Whether you are facing it for the first time or meeting it again through a relapse, the fear is always there.  

How do you move past it?

Is constant vigilance the antidote for anxiety? Or does this constant monitoring and worrying merely fueling the fire of disease?

Using Curiosity to Conquer Our Fears

Why is it that the worst things that happen to us often lead us to our greatest gains?

I believe the secret to whether events appear to be working for or against us lies in our mindset. You can’t change the fact that bad things happen. All you can ever really control is your reaction to the situation. 

Sometimes this means weighing your options carefully and having to choose between the lesser evils. Sometimes this means having to endure experimental cocktails of toxic medicines and radical treatments because it is your best odds at survival. Often it is taking on your greatest fears, knowing full well the feelings of uncertainty will only grow stronger over time.

Sometimes you have to do it afraid.

But what if the flip side of fear is where we meet our true power?

Facing Our Fears Like the Buffalo 

Two years ago, I took a giant leap of faith and signed up to be a part of a clinical trial for a combination treatment of immunotherapy and chemotherapy. I had just been diagnosed with Stage 3 Hodgkin’s Lymphoma. 

I felt like I was running out of time and options. I knew my body was seriously ill. Cancer and chemotherapy were two of my greatest fears. But the thought that I could turn this negative into a positive by helping advance treatment options for myself and others gave me the sliver of hope I desperately needed to hold onto. 

Going into treatment with the mindset that my treatment was helping advance options for others gave me the perspective to embrace chemotherapy rather than to fear it. 

Movies and experiences from other cancer survivors often paint an uncertain picture. During an incredibly uncertain and terrifying time, it is easy to begin to expect the worst to happen. 

But what if approaching treatment with curiosity can be your secret weapon? 

Can an optimistic outlook really increase your chances of survival? Too often, illness leads to a state of powerlessness and the desire to not be a burden, as well as a sense of guilt. However, if we change the way we view our diagnosis and treatment, seeing it as a challenge and opportunity rather than a curse, we can shift into a more empowered state of mind. 

Turns out, the leap of faith I took in signing up for the clinical trial may have been my saving grace. I am now approaching two years in remission and nearly 100% of all patients in the clinical trial have achieved remission. 

Sometimes the quickest way out of the storm is to face it head-on. 

Many times, all hope needs to flourish is a leap of faith. 

Recently I learned about a phenomenon that is often observed throughout the Colorado plains, which are home to a variety of cows and wild buffalo. When a storm approaches, the two animals react in opposite ways. Cows will start moving away from the approaching storm—inevitably traveling in the same direction as the storm. Buffalos, instead, will move toward the storm, rather than away from it.

By running at the storm, the buffalos run straight through it. Minimizing the amount of pain and time and frustration they experience from that storm. While the buffalo experience the pain of the storm sooner because they charge at it, the duration of the storm, however, is much less because they keep moving through it. Compared to the cows, which hope to outrun or run away from the storm, the storm inevitably catches them, and they experience its painful forces for a longer time because they are traveling in the same direction.

It’s such a great metaphor for life because all of us are dealing with the same types of storms. We all have some relationship issues, health battles or financial struggles. And we don’t always get to choose whether or not we have storms. The only choice we get to have is how we respond to those storms.

While we should all aim to be like the buffalo and proactively face the storms of life head-on, dealing with them quickly, experiencing the pain and moving through it. The reality is, most of us are like cows. We see the storm approaching and want to run from it, hoping to put some distance between us and the pain we know is coming.

Sometimes life’s storms are our chance to level up. Perhaps our difficult seasons are meant to reveal our true strength. Maybe our hardest lessons were designed to provide the opportunity for us to take the ashes of what was and transform them into something better. Something that couldn’t possibly exist if it wasn’t for our own unique experience. 

Yes, cancer and tragedy happen. They can also happen for you. 

Often it is our losses, our failures and our setbacks that propel our growth and open new doors and avenues of hope that didn’t exist before.  You could be the game-changer. You could be the patient that gives others unimaginable relief when they hear your story of incredible survival. 

Cancer destroys your sense of self. It demolishes your sense of direction. It can make you question your future. It also reveals profound truths about yourself and others.

Cancer can be a curse, or it can be a catalyst for growth. 

The true challenge isn’t getting cancer. It’s how you react once your greatest fear becomes your reality. 

What can you gain If you view your current setback through the lens of curiosity rather than fear?

Your trust in the healing process. 

Your belief that you can be healed helps miracles take form. 

Your resilience creates a ripple effect. 

Once you show that it is possible to overcome the unimaginable. Anything becomes possible. Just as fear can be contagious, all it takes is for one person to break the mold and change the world for good.

Let it be you. 

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Coming Full Circle: Grateful for What Was, Looking Forward to What Will Be

Same spot, 30 years later. @ Golden Gate Bridge San Francisco, California

Same spot, 30 years later. @ Golden Gate Bridge San Francisco, California

Life often feels like a series of unexpected twists and turns. But have you ever noticed how a series of random events can somehow take you back to the same place you started?

We wander off this way or that way in life and sometimes feel like our choices take us off our expected paths. Yet, one way or another, life brings us back to where we started, either literally or symbolically. These are the pinnacle moments in our life where everything seems to come full circle.

Whether it is a major life event like a birthday or anniversary or the culmination of years of hard work, these are the moments worth celebrating. These are the times we will remember with smiles later. I believe each turn we take around the sun is an opportunity to look back at where we’ve been and set our sights on where we’d like to go next.

Going through cancer has given each birthday I am blessed enough to celebrate with friends and family a deeper, more profound meaning. When it comes down to it, all I really want is more time. More time to mother, be a wife, daughter and friend. My biggest wish is for more time to create memories with my loved ones that will live on long after I’m gone.


A week ago, on December 5th, I celebrated my birthday. Less than 24 hours later, I was flying across the country to California with my family to celebrate my birthday back where it all began for me. The most incredible part was this trip was thrown together on a whim just two weeks before. We weren’t planning on traveling during the middle of the holiday season, but when you get a chance to visit San Francisco you must take advantage of the opportunity.

California will always hold a special place in my heart. Returning to the Bay Area brings a sense of going home. It’s where I entered the world and where some of my earliest and happiest memories took place. I also experienced many firsts in California: My first words, first steps, first friends and even my first significant loss.

My time in California, particularly the Bay Area, brings back a bittersweet mixture of memories. I was 5 years old, the same age as my twins when my family moved from California. Getting to visit my childhood home and park in San Ramon with my family was an incredibly moving experience. You could almost say it was meant to be because we pulled up to our old home at exactly 11:11 am on 12/7. I was so moved I snapped a picture of the dash on our rental van to capture the moment.

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We took a family walk to our favorite neighborhood vista and my children got to play at my favorite childhood park. Although the weather that day was extremely rainy, the rain cleared up during our time in San Ramon and rainbows seemed to be following us around as we toured our old neighborhood.

Family walk to our favorite neighborhood vista in San Ramon, CA.

Family walk to our favorite neighborhood vista in San Ramon, CA.

Rainbows following us to my favorite childhood park in San Ramon, California.

Rainbows following us to my favorite childhood park in San Ramon, California.

Rainbows touching the hillside in San Ramon, California.

Rainbows touching the hillside in San Ramon, California.

Visiting California reminded me of the same forces that carved the canyons, mountains and coast made me. It’s incredible how such beauty, wonder and potential devastation can coexist so precariously.

My family was living in the Bay Area during California’s last major earthquake in 1989. What is now known as the 1989 Loma Prieta earthquake happened on October 17 at 5:04 p.m. local time just before the start of the third game of the World Series between the Oakland A’s and San Francisco Giants. I was 4 at the time and I vividly remember riding my Big Wheel tricycle in our backyard in San Ramon and looking over to see the water in our pool churning like a big tidal wave. My mom and brother came running outside to get me as soon as they felt the earthquake. To make matters worse, my grandma was flying in from Chicago that night and my dad was on his way to pick her up from the airport. He crossed the upper deck of the Bay Bridge 9 minutes before it collapsed due to the earthquake. The 6.9 magnitude earthquake lasted only 15 seconds but it wreaked havoc throughout San Francisco, Oakland and the Bay Area, claiming over 60 lives and injuring over 3,500 people.

The Loma Prieta earthquake caused the upper deck of the Bay Bridge to collapse. My dad crossed over the Bay on this bridge just 9 minutes before it partially collapsed that day.

The Loma Prieta earthquake caused the upper deck of the Bay Bridge to collapse. My dad crossed over the Bay on this bridge just 9 minutes before it partially collapsed that day.

Part of the 880 Freeway in Oakland also collapsed during the Quake of ‘89.

Part of the 880 Freeway in Oakland also collapsed during the Quake of ‘89.

The Marina District in Downtown San Francisco after the 1989 earthquake.

The Marina District in Downtown San Francisco after the 1989 earthquake.

Downtown San Francisco: 1989 vs. Present Day. Buildings have been reinforced and retrofitted to be able to withstand another earthquake of this magnitude.

Downtown San Francisco: 1989 vs. Present Day. Buildings have been reinforced and retrofitted to be able to withstand another earthquake of this magnitude.

Living through the events of that day, showed me how life can change in a matter of seconds. I remember the uneasiness that hung in the air that day and the aftershocks kept shaking the ground every so often. I can still vividly recall how our dog kept running in circles for hours due to the constant reverberations.  Afterward, I remember driving around a seeing the devastation first hand. I can recall seeing large cracks in the cement and buildings ripped apart. Thankfully our home had minimal damage. However, that wasn’t the first earthquake I experienced living there. In total, I can distinctly remember the feeling of being in three earthquakes in the few years we lived in California. One time, a significant earthquake hit during the middle of my dental exam. I remember the nurse screaming and the pictures on the walls rattling so hard they almost fell.

Revisiting the Bay Area 30 years after such devastation showed me firsthand how much progress can be made and how much can be rebuilt and regrown in just one generation. Ask any Californian and they would probably say another major earthquake is only a matter of time. It seems the potential to experience a natural disaster is the price you pay to live among such natural beauty.

In many ways, learning to live on the edge of chaos and catastrophe is a similar to being in recovery. Chaos is often required before a new, healthier system can emerge. For example, in homeopathy, Hering's Laws of Cure, states complex adaptive systems don’t change in a predictable, linear way. Rather Hering’s Laws state that healing progresses from the top downwards, and within to outwards. Healing progresses from more important organs to those of lesser importance.  Disease symptoms are released and cured in the reverse chronological order of their onset.

Hering's Laws of Cure reminds us that our body has an innate wisdom in healing itself, and that its processes of purification and regeneration don't happen in a random or haphazard fashion.  Rather, there is an inherent order and consistency to the healing and purification process. So, when we make a conscious decision to improve our health or fitness, parts of our system will inevitably collapse into “chaos” in order to allow for the emergence of a better, more efficient system. With this in mind, we must learn to trust the process. We must learn to see that death and destruction is a necessary part of the growth cycle. Sometimes everything must fall apart so it can come together better in the end.

The potential for disaster is always looming. Yet all we can really do is learn to accept the uncertainty and volatility of Mother Nature. We do our best through diet and lifestyle changes to minimize our risks of cancer or reoccurrence, but the danger will always be there in some form. We must learn to rise about fear. Sometimes the fear doesn’t go away. We have to go forward afraid. But I’ve learned once you push through that experience you will often realize you were stronger and capable of enduring more than you could ever imagine.


Life is full of profound moments that we sometimes don’t fully understand until the very end. So often we expect the events in our life to unfold in a linear way. We believe we must go from point A to get to point B. We believe we must have XYZ in order to be truly happy.  However, when we get a glimpse of the big picture, we can see that all these twists and turns were taking us to exactly what we needed to experience at that time. 

I’ve learned there are no short-cuts to coming full circle. Each segment, arc, and tangent of our life circle is an important part of our story; without those experiences, we wouldn’t be the person we are today.

Healing from cancer and other traumatic experiences are anything BUT linear. Rather, healing goes in a spiral. Sometimes it’s ruthless and relentlessly pushing us forward and gently pulling us back, again and again, exposing layer by layer until we become wholly transformed into another version of ourselves.

Change often challenges us with the choice to move on to the new or hang on to old. When we are confronted with immense change, we can either become better or bitter. For me, 2019 was about learning to find stability amidst the calm and chaos of life. I’m learning to balance the fear of reoccurrence with the wonder and excitement of being alive.

Looking ahead to 2020, my goal is to say yes more than no to new experiences. I’m want to break out of my comfort zone. I’m taking more trips and more adventures. I’m reconstructing myself from the fragments of what was and finding the silver lining of what may be.


Sources:

1989 Loma Prieta Earthquake
Understanding the Healing Crisis



 

 

 

 

Coping During the Holidays: 10 Truths About Battling Cancer

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Two years ago, I was diagnosed with Hodgkin’s Lymphoma just 4 weeks before Christmas.  The holidays are one of my favorite times of the year, yet it was hard to be merry and bright when my diagnosis loomed overhead like a black cloud, dampening the joy of the season. My fear of getting cancer had been realized. Now it seemed all bets were off. The fear of the unknown and my impending treatment was overwhelming. I went from planning holiday get-togethers to silently planning my funeral.

I tried to put on a brave face for my family. Yet my shoulders were growing heavy with a new burden.  How do I tell my children how sick I am without frightening them? When is the right time to tell family and friends?

The truth is, there is no right time to be told you have cancer but getting diagnosed during the holidays can be especially difficult. But I’ve also found active treatment is only one part of the battle. Remission brings its own unique challenges. I wanted to share 10 truths about battling cancer to help family and friends understand and better support cancer patients and survivors this holiday season.

 

10 Things I Wish Family and Friends Understood About Battling Cancer:

1.       Don’t be afraid to talk to me about my diagnosis, treatment or how I’m feeling. It can be awkward trying to find the right words to say or talk about when your friend or loved one is battling cancer. Many people start to distance themselves out of fear of saying or doing the wrong thing—often without realizing it. Cancer can be a lonely journey at times. Please keep trying to connect. Don’t be afraid. Deep down, I know you mean well and I’m just glad you are trying to relate.

 

2.       I may put on a brave face, but deep down I’m still terrified. This journey is filled with so much uncertainty. There are many unknowns. I work hard to ignore the feeling of constant dread. Battling cancer has taught me that sometimes the fear doesn’t leave. You must do it afraid. Outwardly, I try to remain strong, steadfast and optimistic while internally it often feels like I’m drowning in a sea of ambiguity— with no clear answers and no end in sight.

3.       Sometimes there is no right answer or words to say.  At times I often struggle to put my feelings into words and I’m sure you do too. Please know, when I’m having a difficult time, all I need you to do is listen to my fears and concerns. When you’re at a loss for words, a simple hug or hand-holding can mean all the difference.

 

4.       I may not be able to come due to my health or financial reasons. Please invite me anyway. Going through cancer can be incredibly lonely. From putting off school to starting a family, so much of our lives get put on hold when we get diagnosed.  Family and friends can distance themselves intentionally or without even realizing it.  Please continue to reach out, even if there is a good chance we will decline the invitation. Having an event or special occasion to look forward to can be a welcome distraction, giving us something other than cancer to focus on. It also helps us feel more “normal” when everything in our life feels far from it.

 

5.       Chemo brain is extremely frustrating and debilitating. Please be patient with me. Cancer treatment affects our bodies in multiple ways. Thinking and memory problems are common during and even long after treatment has ended. Many cancer patients struggle with short-term memory loss, finding it difficult to concentrate, multi-task often struggling to find the right words.  Sometimes these cognitive changes can be short-lived; for others, they can be permanent.

 

6.       Remission can in many ways be harder than active treatment. My treatment may have ended but I’m now facing a new battle.  I often find myself walking a thin line between acceptance and vigilance, gratitude and cynicism— struggling to find my new normal amid the constant fear of relapse. It’s the flip-side of cancer treatment that not many talk about.  It’s a constant push and pull to move on while feeling like a shell of your old self. I wish I could rewind the time and be able to go back to being carefree and blindly optimistic about everything my future holds. The unfortunate reality is my health makes long-term plans difficult. I still have four more years of close monitoring until I’m hopefully declared “cured.” This means regular checkups every three months and scans every 6 months.  

7.       Cancer PTSD is real. Treatment is just as hard on our minds as it is on our bodies. First comes the shock of the diagnosis, then the physical effects of treatment and anxiety about what the future holds. Long after treatment is over, and even if you’re in remission, the psychological scars can remain. A study published in the journal Cancer found that PTSD affects one in five patients within six months of diagnosis. Sometimes it is only after treatment has ended that the severity of what we endured comes to light. Regular checkups and routine monitoring continue years after treatment stops causing many survivors to struggle with a constant fear of recurrence. Over time these feelings may fade but it’s important to seek help. Therapy can help you cope and learn to manage your symptoms.

 

8.       Cancer has changed me so much physically and emotionally, I hardly recognize myself anymore. The truth is I lost more than my hair; I lost my sense of self, my identity and parts of my womanhood during my cancer treatment. I apologize for being moody, difficult and distant at times.   The mixture of survivor’s guilt and low self-esteem now makes small talk awkward, and I often take things way too seriously or personally.  Cancer has changed me for better and for worse. But I now understand how precious my time is. I don’t want to waste it being inauthentic. I long for real connection and incredible experiences that ignite my soul. Cancer has given me the courage and urgency to act and stop putting off what I really want.  

 

9.       I may be free of my disease, it still haunts me and affects me every day. We rejoice when treatment ends, but we often don’t realize the long-term effects cancer treatment has on our bodies. Chronic pain, neuropathy, fainting/dizziness, cold/heat intolerance, and heart problems are just a few of the side-effects I’m still struggling with over a year after my last treatment.  

 

10.   Although I don’t always say it, I’m so glad you are in my life and I don’t have to go through this alone. I’ll never forget the outpouring of support my family and I received when we told everyone the news. From babysitting to weekly meals, the constant prayers and care we received meant the world to me. Just knowing that I didn’t have to fight alone and my family was taken care of let me concentrate on getting better. I may be out of active treatment, but the truth is I can use your support and understanding now more than ever. The enormity of everything strikes you once treatment is over. I’ve found healing takes time and it follows no set schedule. It’s messy, frustrating and often unpredictable. Thank you for walking this journey with me. I’m so grateful to have you in my life.

 

Source:

Cancer's Other Side Effect: What You Should Know About PTSD – Roswell Park Cancer Talk

Still Cancer Free* Coping with Long-Term Effects from Treatment

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We must embrace pain and burn it as fuel for our journey.
— Kenji Miyazawa

Cancer survivorship is often described as being disease-free, but not free of your disease.  The truth is, going through cancer treatment is like swallowing a grenade. It may kill our enemy, but it kills a lot a bystanders too—damaging vital organs and causing a cascade of other health issues long after treatment has ended.

Chemotherapy and radiation destroy cancer cells. They also destroy normal, healthy cells in the process. Certain side effects can happen months or even years after your treatment. This may result from scarring to parts of the body or damage to internal organs.

Fatigue, difficulty concentrating (aka chemo brain), heart problems, reduced lung capacity, nerve problems, early menopause, muscle weakness, dental problems and secondary cancers are just some of the long-term side-effects related to cancer treatment. While the benefits of treatment typically far outweigh the risks, it’s important for cancer patients and their families to understand the long-term side-effects of cancer treatment.


I finished treatment for Stage 3 Hodgkin’s Lymphoma on August 9, 2018. Throughout my first year in remission, I’ve been dealing with crippling nausea, neuropathy, vision changes, hormonal and neurological issues, and ongoing heart problems.

Cancer treatment is often a trade-off, where you try to balance the risks of cancer-treatment for the chance to reach remission. Cancer patients are subjected to numerous scans, radiation, surgery and stem-cell transplants. Each treatment carries its own risks and while side effects from treatment are common, not everyone experiences them. However, long-term effects from treatment can show up months, even years later—long after treatment has ended. Some side effects are temporary, while others can last a lifetime.

While I don’t always talk about these long-term effects from treatment with friends and family, they are never far from mind. Every ache and pain or bodily change I notice is heavily scrutinized. Is this a sign of relapse or a latent effect from treatment?

Even when I’ve had excellent check-ups and scans that show no evidence of disease, it’s hard to shake the feeling that I’m living on borrowed time. Even when my outward appearance may show signs of health and vitality, internally it’s often a different story.

Whether it’s dealing with the crippling fear and anxiety of a potential relapse or physical symptoms like neuropathy and heart abnormalities, it’s hard to go a day without being reminded of the long-term effects of my treatment.

This reality hit me hard last weekend when I was hospitalized for possible pneumonia following a family vacation. My entire family came down with a cold. I was the last to get it, yet my immunocompromised body was unable to fight it off at home. Just four weeks earlier I was active, surprising myself and many by being able to play in my college alumni volleyball game. Suddenly, I found myself back in the ER, with a fever of 102.3, shaking from extreme chills and surrounded by an army of concerned doctors running every imaginable test to find out what was wrong. I ended up staying the entire weekend at the hospital.

It was hard at times to fight back the tears during my recent hospitalization. As I laid in my hospital bed, my body covered with sensors and wires tracking my unstable heart rate, part of me was in disbelief that I was back in the hospital. I thought I was doing everything right to heal—eating healthy, taking supplements and exercising. Still, I found myself having a hard time coming to grips with my third hospitalization since being in remission.   I knew it was where I needed to be, but I was feeling low and discouraged. My heart ached to be home with my family. It was hard not to be angry.  I thought should be at a pumpkin patch enjoying this beautiful fall weather, instead of stuck in the hospital watching the leaves turn beautiful shades of red and orange from my hospital bed. Thoughts like this circled endlessly in my head while my trusty chest port provided easy access for the IV antibiotics to hopefully work their magic and cure my chest infection so I could return home to my family.


After a cancer diagnosis, many patients wait anxiously to hear the words “no evidence of disease. However, cancer survivors often say that life after cancer is where the real journey begins. Once you reach remission it is often difficult to come to grips with all that your body has endured during treatment, both physically and emotionally.   Sure, your treatment has ended, and you’ve been told you’re in remission.  You’re ready to move on with life after cancer but side effects from treatment may interfere with your quality of life.  

Although we may be “cancer-free” we still struggle daily with the side effects of our treatment—chemo brain, neuropathy, pain, weight gain/loss and the fear of reoccurrence.  According to the Mayo Clinic, late effects of cancer treatment can come from any of the main types of cancer treatment: chemotherapy, hormone therapy, radiation, surgery, targeted therapy and immunotherapy. The late-term effects of newer cancer treatment like immunotherapy are unknown at this time; however, doctors may find that these treatments also cause late effects in cancer survivors.

Source: Mayo Clinic

Source: Mayo Clinic

Side effects can happen with any type of treatment for cancer, but everyone’s experience is different. Some people have many side effects. Other people have few or none at all.

If you develop side effects, they can happen any time during, immediately after or a few days or weeks after cancer treatment. Most side effects go away on their own or can be treated, but some side effects may last a long time or become permanent.

Side effects of cancer treatment will depend mainly on the type of treatment, the doses used, and if you are getting more than one treatment. Some side effects aren’t always obvious. Your healthcare team might not know that you find it hard to sleep or that you’re having trouble remembering things. Tell them about any side effects that you think are caused by your treatment and how you feel about them. The sooner you tell them of any problems, the sooner your healthcare team can help you cope with them.

Moving Forward Despite the Uncertainty

So much of the cancer journey is uncontrollable and unpredictable. As hard as cancer survivorship can be at times, I’ve found the best way to counteract the side-effects is through self-care and mindfulness. 

Our minds are incredibly powerful. Even if something is very small, you can make it into a massive issue in your life by choosing to intensely focus your thoughts upon it. So, I do my best to focus on what I want to make bigger, and not on what I want to avoid. I can’t help what happened and I can’t control what my future will be. But I can be very present and focus on amplifying the good in my life.

One way I try to stay present is mindful is by practicing daily gratitude. Sure, I may experience crippling side-effects at times which make it easy to get lost in all that is going wrong in my life; but if I pause long enough, I can see there are way more things that are going right.  And most importantly, I am still here to experience it all—the good and the bad and that is truly a blessing.

 

Sources:

Cancer survivors: Late effects of cancer treatment. -Mayo Clinic

Late and Long-term Side Effects of Hodgkin Lymphoma Treatment- American Cancer Society

Coping with treatment side effects- Canadian Cancer Society

 

Present, Not Perfect

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With endless time, nothing is special. With no loss or sacrifice, we can’t appreciate what we have.

— Mitch Albom

The realization hit me harder than I expected…

There are less than 3 months left in this decade.

IN. THIS. DECADE.

My shoulders suddenly started to feel a little heavier once the weight of the burden began to sink in. How am I going to spend these last few months of the year?

Time has taken on a new urgency in my life since I’ve been in remission. Why is it that we never seem to know until it’s too late just our limited our moments are? Why do we take our time here on earth and the precious time we have with our loved ones for granted most days?  Why do we often fail to do anything positive, productive, beautiful, creative, healthy and passionate with each minute of the day?

My cancer diagnosis has altered my perception of time. I found a minute can seem like an eternity when you’re hooked up to an IV during treatment.  I’ve seen advanced cancer spread and be destroyed in a matter of months. I know everything can change in an instant. So my time is something I can no longer afford to waste on unimportant things—things that do not spark joy in myself or others.

This October marks two years since my cancer journey first began. In October 2017 is when I first noticed the lump on my neck that turned out to be Stage 3 Hodgkin’s Lymphoma. These past two years have been a blur of doctor’s appointments, tests, waiting, uncertainty, loss, growth and every emotion in between.

Why is it the more we try to manage and plan our time, the quicker it seems to slip through our fingers? What I do know is that each tick of the clock and day that passes brings me closer to another visit or another scan that could possibly turn our lives upside down again.

So where do we go from here? How do I keep moving forward, when everything around me seems to remind me of where I’ve been? How do I make the most of the time I’ve been given?

It kind of feels like our lives are made up of a countless number of weeks, doesn’t it? Unless we are under extreme circumstances, we never really stop to face our own mortality. However, when we actually do stop to do the math our fleeting, momentary existence here becomes shockingly clear:

 Life is a matter of moments, not milestones.

Did you realize if you live to be 90, that means you only get 4680 weeks on this earth? If we live to be 70 years old, we get roughly 613,200 hours to live.  (That’s 365 days, times 70 years, times 24 hours.) This is the time we have to enjoy, to love, to lose, to learn and to cry. Our search for meaning, fulfillment and purpose must fit into this average amount of hours.  

We know that our children grow up in the blink of an eye. But did you realize that outside of only 18 summers you have with your child, between the day your child is born, and the time he or she turns 18, you get just 940 Saturdays — and 260 of them, are gone by their fifth birthday?

 The hard truth is we spend a lot of our time doing other things. Things we have little choice in, as our clocks tick down to their final moments without us realizing—we often don’t know how little time we have left until it’s too late.  

 As a cancer survivor, it feels selfish not to try to make the most of every moment I’m blessed with. Unfortunately, the first year of my remission was one of my toughest to date.  I finished treatment on August 9th, 2018 and enjoyed one full month outside hospital walls before my family once again found ourselves in the middle of another health emergency.

 I had high hopes and some lofty plans when I finished my treatment last August. Last October I decided one way I was going to reclaim my health after treatment was to change my daily routine thanks to Mel Robbin’s work with the 5-second rule and Rachel Hollis’ book Girl, Wash Your Face.

I decided to take part in Rachel Hollis’ #last90days challenge. The goal of the challenge is to end the year with the same intensity, drive and focus that we usually plan to start the year with in January. This is based on the principle that it takes 21 days to create a habit, and 90 days to change your life.

The last 90-day challenge begins on October 1st and goes on until December 31st. The #Last90DaysChallenge encourages us to make the last 90 days the most successful days of our year. Each day you follow a 5 to Thrive plan; each week tune in to the weekly podcast and keep yourself accountable.

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It started off great. I was waking up an hour earlier than I normally did. Starting the day by writing 10 things I was grateful for and setting my daily intention. I was moving my body, staying hydrated and away from foods that did not benefit my health.

 But as usual, life had other plans…

When my oldest daughter became seriously ill last year, my priorities shifted from reclaiming my health to ensuring my daughter made a full recovery. It’s hard to wake up an extra hour early when you spend those extra hours laying awake at night full of dread and worry. When times get hard, it’s easy to forget what you are grateful for and to be thankful for what is still going right in your life even when everything appears to be falling apart. Suddenly the things that occupied your time get moved to the back-burner. Your health is no longer your priority. Your focus becomes survival at all costs.  

However, I’ve found where ever you are in your health journey, little changes made consistently over time can bring lasting results for good. While I may not be pushing myself to adhere to the Five to Thrive program and #last90days challenge this year, the habits I formed doing the challenges last year are helping me to make the changes I need to hopefully achieve long-term remission. I do know what each step that I take towards personal growth, is one more action I am taking to hopefully ensure I remain cancer-free.

So in honor of #thelast90days this year, here are seven tips that are helping me appreciate and make the most of my time:

1.    What is your time worth to you? If my journey with cancer has taught me anything it’s that our time here is way more limited than we realize. I believe there are two important questions when it comes to how we view life and death: If you knew you would die tomorrow, what would you do today? And, if you knew you had 20 years more to live, what would you do today instead?

2.    What is the legacy you want to leave behind? If you knew your time was up tomorrow, would you waste your final moments in worry about what will come, lost in regret wishing you had lived differently? Would you recognize that each day is a gift and in every 24 hours lies the possibility of joy, contentment and connection with your loved ones? Would you consider that in every moment there is a choice to see the good or the bad in any situation?

3.    Is this how you want to spend your minutes? What is the value of your time? To make the most out of my days, I have started focusing on the things that deeply matter to me. The question I am now asking myself is, “Is this how I really want to spend my time?”. This helps me prioritize what’s important and what’s not. What is worth concerning myself with and where I need to let go and refocus my attention.  

4.    Change your story. Change your situation.  When I’m feeling anxious or upset about something I like to zoom out and picture the situation from a different perspective. I try to remind myself that I am 1 of 7 billion people on this planet. BILLION. Everything I experience is affected by only 2 factors: 1) my biology. 2) the stories I tell myself (my inner narrative).  I like to ask myself, “What am I telling myself that is making me feel this way?” After I acknowledge the story I am telling myself, I then ask, “What can I tell myself to better serve me?”

5.    Priority management vs. time management. I’ve come to learn in my first year of remission, that steady progress, healing and even radical remission are rooted in grace and gratitude. Making the most of the time we are given is a full-time job. After pushing through the unthinkable these last two years, I finally realized that I really don’t have to do anything. I was already doing most of the correct things in regards to my health and nutrition. Now as much as I don’t want to admit it, I must simply be. If my body is in a constant state of survival, it has no to rest, recover and heal.  I must be patient and let my body heal on its own terms. Just as you cannot force a tomato to ripen faster, I must provide my body with the right conditions and environment so that it can start to heal itself.

6.    I don’t have to do anything but I get to do THIS! Realizing that others aren’t as fortunate as I am to be where I’m at today regarding my health helps me stay grounded in the present moment. Whether it’s the fact that I’m in remission or that I have both my arms, hands legs and feet. I can see, hear, smell and taste. Other’s aren’t as lucky. It’s important to focus on what’s going right, instead of worrying or trying to predict what could go wrong. To help me stay in a positive mindset, I try to spend at least 5-10 minutes every morning in silence, then I write or reflect on 10 things I am grateful for that very day. This helps give me much needed perspective on the size of my problem or current situation. When I don’t feel like moving my body or working out, I remember the days when I was too sick or too weak to get out of bed. I remind myself that to be active and to be able to work out is a privilege not everyone, even myself at times, is able to enjoy. I must take advantage of this opportunity while I still can.

7.    Learning to say “Yes and…” see what happens. Perfectionism often fuels depression and anxiety. Learning to let go and go with the flow has made a huge difference in my life and my relationships. If I’m not careful, I can easily wall myself off by saying no to new experiences. I can quickly come up with a ton of reasons why to do or not do something, but I’m starting to learn that if I can just relax and let things unfold naturally things still work out okay---and I save myself a whole lot of energy in the process. Energy that is usually better spent in other ways rather than worrying about all the things that could possibly go wrong. To put this into practice, I’ve started replacing the “what ifs” with “why not” scenarios when I feel my anxiety start to bubble up and cloud my ability to act.

Time management is an oxymoron. Time is beyond our control, and the clock keeps ticking regardless of how we lead our lives. Priority management is the answer to maximizing the time we have.” 

– John C. Maxwell

We often forget that our beginning and end are the same. What we do in between is what makes all the difference. Remember, it's never too late to be who you might have been. We can always be a little kinder, a little healthier and less selfish.  

Cancer gave me the wake-up call I needed to make significant changes in my priorities, diet and lifestyle. Where ever you are on your journey, taking the time to set goals to refocus on your health and make yourself accountable is always time well spent. But if this is the year you need to give yourself some grace and a pat on your back for all that you’ve overcome, take the time to rest and enjoy yourself and time with your loved ones. Because as they say, the time you enjoy wasting, is never wasted time.  

How will you be spending these last 90 days of the year?

Resources:

How the 5-Second Rule Can Transform Your Life- Mel Robbins

Girl, Wash Your Face- Rachel Hollis

#Last90days 5 to Thrive Challenge

Synchronicity of Healing: Drawing Straight with Crooked Lines

Celebrating my remission on September 19, 2019. We later realized I was leaping in the air at exactly 1:11 pm local Chicago time when this photo was taken. Repeating numbers like 111 are often a sign of synchronicity, alluding to the deeper, spiritu…

Celebrating my remission on September 19, 2019. We later realized I was leaping in the air at exactly 1:11 pm local Chicago time when this photo was taken. Repeating numbers like 111 are often a sign of synchronicity, alluding to the deeper, spiritual meaning of your current events.

The heart of man plans his way, but the Lord establishes his steps.
— (Proverbs 16:9 ESV)

So many times, we find ourselves trying to make sense of the senseless.

Whether something was beyond our control or happened because of our own making—all of us have experienced those unexpected twists and difficult turn of events in our lives.

We find ourselves constantly reflecting on why something happened or worked out the way it did. 

We wonder how can we possibly carry on as we search for ways to collect the broken pieces of ourselves and put them back together?

How do we make something meaningful, something beautiful, out of so many crooked lines?

Maybe what once was a clear path forward, is now muddled with fear and confusion. Whether it was illness, loss or circumstance, a detour shoved us off the straight path and onto a crooked line.

These are the moments in our lives that bring us to our knees and force us to examine everything around us and the stories we tell ourselves.

My moment came when I was diagnosed with Stage 3 cancer.

While it’s true our world can change in an instant, we often get so caught up in events that we forget we have the power to rewrite the story we tell ourselves. 

We forget that our world can be an entirely different place than the world we lived in just a few moments ago, once our attitude toward it changes.

I didn’t realize it until recently, but the world I have been creating for myself through my thoughts and actions was full of fear, scarcity and survival. Unknowingly, I was living in this mental prison for most of my life until illness and cancer forced me to reexamine my reality. 

I have repeatedly told myself I was broken, unfixable, and at times even unlovable.

I lived in fear when I was told some of my afflictions were “permanent” and incurable.

I believed part of me was dysfunctional and would remain that way for the rest of my life.

However, I once discovered these stories I was taking as absolute truths weren’t MY truth—things started to change. I began to realize how these attitudes and beliefs grew from the seeds of the stories that were planted by society, my caregivers, teachers, coaches and the many connections I have made throughout my life.

Throughout my journey with cancer, I have found the more I try to unpack my personal narrative, the more I am able to understand the parts of my life that need to change so I can heal.

I soon started to discover how our thoughts and the words we use, and the relationship we have with those words have the potential to directly affect our experiences. It’s as if our thoughts go out into the universe and take root as either seeds or weeds. They sprout in straight or crooked lines depending on our choices and intentions— both positive and negative.

From this quantum perspective, we often overlook the incredible fact that it is the sum of our connections that brought us to this very moment. 

We forget that we are connected by our bodies, our DNA, the stories we tell ourselves, and the life experiences that have brought us to this point. And I’ve found the more we understand all these connections, the more we can start to shape them to serve our best interests and highest good.

One of the ways I am constantly reminded of this universal connection is through synchronicities.

The term synchronicity was first coined by the psychologist Carl Jung to describe a meaningful coincidence which seems to defy probability and “normal” explanations.

Jung believed synchronicities illuminate the mysterious connection between our personal psyches and the material world, based on the fact that everything exists as different forms of energy. Viewed in this way, synchronicity allows us to see the world with different eyes—one based on awe, curiosity and profound meaning.

When we learn to view things in this way, the world can speak to us in a completely new way. The rational, scientific facade of the world, although still present, comes alive with the vibrancy and presence of spirituality and divine connection. We can discover meaning in life and find those ‘golden threads’ that seem to weave through our lives revealing truths about ourselves and our individual journeys.

 

“Life is a symphony of synchronicities waking us up to the reality of who we really are.” Noah Lampert, Synchronicity Podcast

 

Maybe you’re reading this now because you recently had one of those life-changing moments or synchronicities yourself. A when something happens that makes you question the role of design in the universe and your own place within it.

Examples of synchronicities would be overhearing a random conversation between strangers that appears to answer your own inner questions; or how events seem to unfold in the perfect manner to lead to you to the right information at the right time from the right people that are necessary to progress on your healing journey.

Synchronicities can bring the perfect people to lead you to success, or bring you to situations where everything seems to falls into place to improve your life.

I believe synchronicities are divine guideposts urging us to continue on our current path by helping to remind us that everything is connected.

Our intuition seems to have a direct connection to God and the divine knowledge that steers the grand plan of the Universe. Through our intuition, we can be guided to stay on this divine path—one that is filled with incredible synchronicities along the way.

Since 2012, I have been experiencing numerous number synchronicities daily. Unknowingly catching the time 11:11, 1:11, 2:22, 4:44, 11:44, and seeing different repeating number patterns and meaningful names show up in the most unexpected places. Throughout my journey with cancer, these synchronicities only seemed to intensify as highlighted in my two-part series Faith, God and Synchronicity

Over this past year in remission, I have continued to experience multiple synchronicities on my journey to healing.

Such as being fortunate to be diagnosed exactly when I was so that I could participate in cutting-edge cancer treatment that is showing unprecedented results. I was floored to find out this past year that if I was diagnosed sooner or months later, I may have missed my spot since my clinical trial was only open to 40 patients.

Or how after weeks of anticipation leading up to my latest scan, it seemed I had butterflies following me everywhere I went. Especially meaningful to me was the butterfly I saw while waiting in traffic on the way to the hospital for one of my recent scans at Northwestern’s Lurie Cancer Center.

Captured this butterfly floating through traffic on my way for my latest scan at Northwestern in Chicago.

Captured this butterfly floating through traffic on my way for my latest scan at Northwestern in Chicago.

Connecting with Coincidence  

Later as we were coming home from my scan, my husband and I noticed a lady bug had been stuck to our windshield for nearly the entire trip. These two instances struck me as a key coincidences because a butterfly is known to symbolize transformation and a ladybug is believed to be an embodiment of good luck. I took these random events and their timing as positive signs that my scan would be clear and I was still well on my path to healing and complete remission.

On September 18th, I received confirmation that my latest scan was clear and I’m still in remission. However, one of the most profoundly meaningful events of my entire cancer journey occurred two days later on September 20th, 2019.

One of the stories I had been telling myself was my body is broken and it may never be the same.

I believed that my days of playing competitive sports were over. I thought I was not strong of fit enough to play at a competitive level anymore. In my youth, I played junior Olympic volleyball for over 5 years, and was fortunate to play volleyball my freshman year in college at Dominican University in River Forest, Illinois. However, a severe ankle injury ended my collegiate volleyball career my sophomore year, and in a way, reinforced the belief that my sports days were pretty much over for good. After that year, I transferred universities and never played collegiate volleyball again.

Fast forward to present day, where I am now a mother of three and a stage 3 cancer survivor with a chest port from treatment still in place.

I still felt that story to be true, but deep down I hoped and prayed for a different outcome.

One of the ways I longed to celebrate overcoming my cancer and this year of recovery, was to spike a volleyball in remission. What seemed like a lofty goal ended up happening thanks to a little divine timing and perseverance.

For the second time this year I was invited to play at an alumni game at Dominican University. The date was close to the date of my scan so I was not intending to play. However, after I received the news my scan was clear the next day the current coach from Domincan’s Woman’s Volleyball team reached out to me again to confirm if I could play. I took this divine timing as a synchronicity that this a step I needed to take on my path to healing.

As I walked into my college gymnasium, I did my best to smile so that I could hold back my tears. Only 8 months prior, my children watched as I had to be taken by ambulance from my home because I was so ill. But on this night, my husband and three children were able to see me healthy and active, fully reclaiming my health and vitality.  

Here is a video of me from that night during warm-ups where I was able to turn my vision of remission into reality and a treasured memory for my family: I got to spike out cancer for good and knock a huge item off my bucket list in remission:

 

To further confirm this synchronicity, three days after I played in the alumni game, Facebook reminded me 8 years ago that very day I had received my college degree from DePaul University, ending that chapter of my life.


Sometimes we have to look back to realize just how far we’ve come. To view my journey in pictures visit my gallery.

Sometimes we have to look back to realize just how far we’ve come. To view my journey in pictures visit my gallery.




I had to smile in awe with the realization everything had come full circle.

I was finally ready to finally release those limiting beliefs about myself I had been holding onto for so long. Thanks to hard work, determination and some divine timing, I was finally able to change the ending of that story and start to heal.   

 Healing comes in many forms. However, I believe one of the first steps to healing is to develop the self-awareness to understand the stories you tell yourself and the meaning behind your experiences, both positive and negative.

From the divine timing of my diagnosis to the medical professionals placed in my path who have helped me achieve remission, I believe God is always speaking to us, sending us little messages, causing coincidences and serendipities, reminding us to stop, look around and to believe in something else, something more.

We do not always see God’s will and the divine plan when we are walking through it.

At times the paths we are walking become so crooked and tangled, we lose our faith and sight of the bigger picture. We forget that often it is our setbacks that are preludes to God’s deeper work. While our difficult circumstances can cloud our perception of reality, I believe God always sees the whole canvas, and lets us know in meaningful ways that we are right where we need to be.

Whether my experience was pure coincidence, my unconscious sending me a message, or the Divine giving me guidance… it doesn’t really matter in the end. What matters is that I took notice. Finding meaning in the seemingly ordinary events of my life has brought unrivaled comfort, healing, and direction into my life.

I hope the same is true for you.


Stories We Tell Can Change Our life-HW.JPG

Sometimes we have to look back to realize just how far we’ve come.

To view my journey in pictures visit my gallery.

For my latest blog about how synchronicity is still playing a huge role in my healing journey check out my latest blog in my synchronicity series Faith, Synchronicity and Healing.

A big thanks to Neurologic Wellness Institute for being part of my healing journey and helping me celebrate remission by spiking out cancer!


For more on the topic of synchronicity:

Energizing Jung’s Ideas About Synchronicity- Psychology Today

Connecting with Coincidence with Dr. Bernie Beitman, MD - EP 13 - Guest: Roderick Main

Remission is Like the Tide

“R is for REMISSION.” May this be your reminder that remission is always possible, no matter the odds stacked against you.I came across this rock along the shore of Lake Michigan in Fort Sheridan, IL while preparing to learn the results of my latest…

“R is for REMISSION.” May this be your reminder that remission is always possible, no matter the odds stacked against you.

I came across this rock along the shore of Lake Michigan in Fort Sheridan, IL while preparing to learn the results of my latest scan.

Remission is like the tide.

Ebbing and flowing,

Constantly changing,

Momentary highs,

Bottomless lows

Waves of death and rebirth

Carving out everything in its path.

Fleeting like the shore,

the ground, like sand beneath our feet

is constantly shifting, never quite solid.

Taunting us like the horizon

Always there—just slightly out of reach.

Side by side we fight against the tide,

Surfing these waves of uncertainty.

Wearing our pain with smiles

As the tide sweeps in,

Daring to take us down.

Hand in hand—we know we will withstand

One day, we will make it to solid ground

As the tide gracefully ushers us back

towards the shoreline of eternity.

Moving Forward; Not Moving On

“Just when the caterpillar thought the world was over, it became a butterfly.” English proverb

“Just when the caterpillar thought the world was over, it became a butterfly.” English proverb

“Take a deep breath in and hold it…”

I took a giant gulp of air and held my breath for what seemed like an eternity.

“You can breathe now.”

My legs were shaking uncontrollably from the coldness in the room and the anxiety coursing through my body.

Suddenly, a river of warmth radiated through my body as the contrast dye flowed from my chest up my neck and throughout the rest of my body.

Months and weeks of dread and anticipation have led to this point. The truth is I will be holding my breath until I get the results of this latest CT scan.

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For the next few days I will be in this sort of agonizing limbo, where my future hangs on the results of today. This period is never easy.  I will never get used to having to plan my future and my family’s long-term plans in three-month increments.

One of the hardest parts of cancer treatment is the not knowing. The long periods when we must wait, hold our breath in anticipation of what’s next.

It’s hard to move on after you have cancer. Whether you’re lucky enough to reach remission, it seems you are always walking on eggshells, afraid that every weird sensation is your cancer resurfacing.

It’s hard to move on, when every three months you have a doctor’s visit, blood work or a scan that will stage your fate. It’s easy to get lost in this ambiguity. It’s difficult to stay positive amidst so much uncertainty.

But that’s the reality of life after cancer.

Life gets shaded differently after treatment. Once vibrant and full of life and certainty, your world suddenly becomes colored in varying shades of gray. Everything it seems now gets filtered through a different lens.

Our past and present unique life experiences color the lens through which we view the world. And sometimes it’s the darkness that brings color to our existence and meaning to our lives. I’m slowly learning I can’t stop these waves of uncertainty, and I’m getting better at riding the waves of ambiguity. I’m starting to find new ways of balancing the heartache that comes from the not knowing.

Living in the shadow of cancer helps you realize we are all just a heartbeat away from eternity.

We never really know what an hour or day may bring. I’ve found that sometimes it's the same moments that take your breath away are the same ones that breathe purpose and love back into your life. And many times, the only thing we have control over is how we choose to react to the challenges we face.

We are all searching for our perfect endings. We want our happily-ever-after.

But I’ve learned, the hard way, there is no moving on after cancer, there is only moving forward.

We push forward through all the uncertainty and the painful side effects from our treatment. Time and time again we pick ourselves up and carry on the fight because we now realize that to live is to risk. To love is to risk. We can’t and won’t allow fear to direct our choices.

Fear likes to be in charge. It wants us to forget that we’re not in control.

Fear wants us to forget that no one has all the answers and that manipulation and worry never work.

Fear encourages us to play out negative scenarios in our mind for our future and the future of the world.

But I’m slowly learning when I spend less and less time listening to fear and my inner critic, through practice, a little willingness and a shift in perceptionhow quickly I can rise above it.

Life is about not knowing, having to adapt, taking each moment as it comes and make the best of it—without knowing what’s going to happen next.

Challenges will come. Results may surprise. In the end, what we are waiting for is not as important as what happens to us while we are waiting. We must trust the process and let life unfold naturally. Just as butterflies remind us through their own transformation to keep the faith—all will work out exactly as it was meant to be.



"The butterfly counts not months but moments, and has time enough." - Rabindranath Tagore

"The butterfly counts not months but moments, and has time enough." - Rabindranath Tagore



10 Tips for the Newly Diagnosed

breathe image.jpg
Approximately every three minutes, someone in the United States is diagnosed with a blood cancer.

Two years ago, I dropped my youngest off at preschool and received a call an hour later that forever changed my family. I don’t remember much more the surgeon said to me besides the words “lymphoma” and “cancer.” After receiving the devastating news, time stood still. Then everything became a whirlwind of doctor’s appointments, lab tests and waiting for answers.

When you hear the word cancer, you feel a wide range of emotions from fear, grief and sadness. Even if you thought it might be cancer, the news it still shocking.  Despite the wide range of emotions you are feeling, it’s important to remember you aren’t alone. More than 1.3 million Americans are living with or in remission from a blood cancer. September is Blood Cancer Awareness Month, a time to honor cancer fighters and survivors of blood cancers like leukemia, lymphoma and myeloma that affect your bone marrow, blood cells or lymphatic system. Whether you are your loved one was recently diagnosed, here are some tips that may help you on your journey.

1.     Don’t dwell on the statistics. Cancer affects everyone differently. Not everyone loses their hair. Your journey is your own. Get a second opinion or a third. Look into clinical trials and explore new treatment options like immunotherapy. Instead of focusing on the statistics, seek out stories from other cancer survivors who achieved radical remission against all odds. Remember, no matter what the prognosis, there is a first time for everything are you are more than your diagnosis.

2.     Breathe. Hearing you have cancer is a difficult experience and may lead to a range of emotions. Grief, worry and fear are natural responses to such shocking news. Learning how to work through these powerful emotions can help lower your stress and help you heal. Be kind to yourself and try not to judge yourself for how you feel. Your emotions will often fluctuate as you move through treatment. A great practice I learned during treatment was how to use my breathing to calm my anxiety. There are many different breathing techniques that can reduce your anxiety and help you calm down almost instantly. One of my favorites it the 4-7-8 technique, which focuses on the following relaxing breathing pattern: Empty your lungs of air. Breathe in quietly through your nose for 4 seconds. Hold your breath for a count of 7 seconds, then exhale for 8 seconds.

3.     Take someone with you. The thought of living with cancer and treatment can be overwhelming. It may be hard for you to hear or remember anything you hear the news. Having an extra set of ears with you at your first appointments can help you understand your treatment options and next steps. It’s also a good idea to record your first appointment. There are many great apps you can use on your phone to record your first appointments to ensure you don’t miss any important details.

4.     Find Support. After a lump or a symptom leads you to the hospital or your doctor, there may be many days or weeks of waiting to have tests done and waiting for test results. This is often one of the most difficult and scary times for cancer patients as it’s when we undergo a battery of tests to stage our cancer and prepare for treatment. After I was diagnosed with Classical Hodgkins Lymphoma, one of the first things I did was join a Facebook group for my type of cancer. Getting connected with other cancer fighters and survivors gave me tremendous hope and helped me better prepare for treatment.

5.     Surround yourself with positivity. Whether it’s your favorite quotes, bible verses, song lyrics, or motivational videos, reading inspirational messages daily can help you cope with treatment. Make a Pinterest board of uplifting quotes or save them to your phone so you can view them during treatment. 

6.     Visualize a positive outcome. Your thoughts and words have the power to heal. Just as the mind’s reactions to stress can impair immunity and create illness, according to psychoneuroimmunology (PNI), it is believed that certain mental processes, like specific images and visualization procedures, can stimulate the immune system to better fight disease. Use your imagination to construct the following scenes in vivid detail: Imagine your immune system as little soldiers fighting and destroying your cancer. You can also imagine a luminescent stream of white light entering through the crown on your forehead radiating from your head to your toes healing you. Next, imagine yourself getting the news you are in remission. Picture yourself surrounded by family and friends ringing a bell to signify the end of your treatment. Repeat these visualizations daily. Remember: Think well, Act well, Feel well, Be well. Research shows that visualization has a calming effect, increasing optimism and giving you more control over your personal situation.

7.     Use mantras and sound to combat negative emotions. Anger, jealousy, fear, anxiety and even depression – all these difficult emotions are caused by over thinking. As Eckhart Tolle says, “It’s never the situation that causes suffering, it is your thoughts about it.” Thoughts come with their own emotional charge that researchers have discovered lasts about 90 seconds. The problem is we keep thinking over things, reigniting the emotional charge until we become sick, weak and drained of our vital energy. Mantras can help disrupt negative thoughts. They are specific sounds or vibrations that when chanted aloud or repeated silently, can create positive effects in any area of your physiology or life—for healing, transformation, and inner awakening. There are many mantras available to help support and increase your balance, harmony, and self-awareness. You can also receive similar effects by listening to mantra music, binaural beats and meditation music on YouTube or other music streaming services.

8.     Laugh. Laughter is the best medicine. A great way to pass the time during treatment or when you are anxious about an upcoming test or scan is to distract yourself with laughter. I don’t know about you but America’s Funniest Home Videos and baby videos can always make me smile.  

9.     Make a playlist.  Music has healing power. Sometimes there are no words that can relate to the depth of your feelings, but music can help bridge the divide. Make a playlist of your favorite songs and pump up anthems. You can also curate a special “Cancer Killer Mix” by asking your friends or family to send songs that you will listen to during treatment. Chemotherapy can take hours and what better way to pass the time than listening to your favorite songs and discovering new music.

10.     Look into local resources. Hospitals and cancer societies like the American Cancer Society and other national and international organizations have many resources to help you and your loved ones manage your lives and get the emotional support you need through treatment and recovery. Free wigs, rides to treatment, lodging programs and financial assistance are some of the many local resources that can help you and your loved ones during treatment and beyond.

 

 

Sources:

1.     Immunotherapy for All Cancer Types – Cancer Research Institute

2.     Blood Cancer Awareness Statistics- LLS

3.     Radical Remission Case Studies

4.     Calming Breathing Techniques- Healthline

5.     Apps for Voice Recording -Techzilla

6.     PNI Visualization Techniques for Serious Illnesses – Psychology Today

7.     Healing Mantras – Chopra Center

8.     Binaural Beats Health Benefits- Healthline

9.     American Cancer Society Resources

10.  Cancer Patient Resource Websites

11.  International Resources for Cancer Patients & Caregivers

12.  My Treatment for Stage 3 Hodgkin Lymphoma

Ringing the Bell: Celebrating Milestones During Treatment

New beginnings are often disguised as painful endings.
— Lao Tzu

A year ago today I rang the bell marking the end of my treatment.

I’ll never forget the feeling as I stood in my hospital room and proudly rang a white ceramic bell that had been in my family for generations.

My husband, best friend and my favorite nurses cheered me on as I clumsily, cautiously and courageously rang the bell.

It felt a little silly—maybe I was wrong to celebrate such a moment?

This was a moment that unfortunately not all those who are diagnosed with cancer, especially stage 3, get to have.

The truth is, milestones are an important part of our cancer journey. They are the signposts that signal how far we’ve come in our treatment. These milestones can be the date of your cancer diagnosis, the end of chemotherapy or radiation, the anniversary of your surgery, or annual anniversaries of having no signs or symptoms of cancer.

But not all cancer survivors and patients feel comfortable celebrating these moments. Some feel it’s insensitive to celebrate in the company of others who may not be able to achieve a similar milestone.

Treatment milestones often trigger a wide range of emotions, from gratitude and relief to pain and sadness. Many still fear recurrence—even after many years have passed. It’s for many of these reasons that my hospital didn’t have a Cancer Survivors’ Bell in our cancer center.  And that’s perfectly okay.

Endings are uncomfortable and sometimes messy.  But I’ve always believed endings must be honored, especially during times of uncertainty.

Once you’ve been told you have cancer, that word is always with you. As much as we would like to leave our diagnosis and treatment in the past once it’s over, we must recognize we are entering a new chapter in our journey—we are transitioning from being patients to survivors. This transition can cause a mix of feelings from excitement to anxiety and fear for what’s next.

Endings help remind us that things are constantly changing, and they will never go back to the way they used to be. And that's fine because "different" doesn't have to mean good or bad. It's simply a different experience. I believe healing comes through acceptance, and in learning to balance the pain of loss with the excitement of change.

Every ending makes space for a new beginning. It is creating the opportunity for us to start again with what we’ve learned, a little stronger and wiser than before.

Facing cancer has taught me that sometimes the only way through a difficult time is by facing it head-on. And sometimes an ending needs something more than words to honor its significance.

I chose to stand up and ring that bell to let others know that REMISSION is possible. Cancer is being defeated every day. Choosing to honor the ending of my treatment helps let other cancer patients know that victory is possible, and there is always a reason to celebrate and be grateful for how far we’ve come.

Overcoming the Trauma of Having Cancer

“My past is an armor I cannot take off, no matter how many times you tell me the war is over.”

“My past is an armor I cannot take off, no matter how many times you tell me the war is over.”

Tomorrow I will walk through the doors of the Lurie Cancer Center as I have many times before. This routine has become all too familiar. Over nine months of treatment mixed with numerous other visits and hospitalizations allows me to walk the halls of Northwestern with ease and eerie familiarity.

It starts with a visit to port draw to get my blood drawn. This is hands down one the hardest part of the visit for me. Hours before my appointment I begin preparing for this by applying a numbing cream to my chest port—a small device surgically implanted into my chest that helps deliver medication and make for easier blood draws during treatment.

For many cancer patients, our port devices stay in long after our cancer treatment—sometimes for years because of the risk for potential relapse.  Until then, it requires routine flushes by a medical professional. While showering or getting dressed, this protruding bump in my chest is a constant reminder of my treatment and the fact that my journey is far from over.

Next, I will wait to see my oncologist and get the results of my latest blood work. I will hold my breath as she palpates the lymph nodes in my neck, chest and lower body. I pray that I hear the words, “Everything looks good. See you in a few months.” Yet I also try to mentally prepare myself for the potential ‘what ifs’. Will I need another repeat scan? What if my blood work is off?

Many people believe that going into “remission” means victory—that one has defeated their disease and they have moved on to recovery. Surely, remission marks a major turn in cancer care, but it is more complicated than simply being done with cancer treatment.

The following is a vivid glimpse into the reality of being a cancer survivor.


Imagine you're going about your day, minding your own business, when someone sneaks up behind you...

You feel something press up against the back of your head, as someone whispers in your ear.

"Sssshhhhh.... don't turn around. Just listen. I am holding a gun against the back of your head. I'm going to keep it there. I'm going to follow you around like this every day, for the rest of your life."

"I'm going to press a bit harder, every so often, just to remind you I'm here, but you need to try your best to ignore me, to move on with your life. Act like I'm not here, but don't you ever forget... one day I may just pull the trigger... or maybe I won't. Isn't this going to be a fun game?"

This is what it is like to be diagnosed with cancer. Any STAGE of cancer. Any KIND of cancer. Remission does not change the constant fear. It never truly goes away. It's always in the back of your mind.

Please, if you have a loved one who has ever been diagnosed with cancer, remember this. They may never talk about it or they may talk about it often. Listen to them.

They aren't asking you to make it better. They want you to sit with them in their fear... their sadness... their anger... just for the moment. That's it.

Don't try to talk them out of how they are feeling. That doesn't help. It will only make them feel like what they are going through is being minimized. Don't remind them of all the good things they still have in their life. They know. They are grateful.

But some days they are more aware of that gun pressing into the back of their head and they need to talk about it. Offer them an ear.

Source: The Teal Society, @thewombtangclan


No Evidence of Disease, Lingering Trauma

There is no timestamp on trauma. There isn’t a formula that you can insert yourself into to get from horror to healed.
— Dawn Serra

In the US, 1 in 2 women and 1 in 3 men will develop cancer in their lifetime. It is often said there are four phases to dealing with cancer; diagnosis, waiting for test results, treatment and the period following treatment or remission.

Thanks to advances in treatment and early detection, more people than ever are becoming cancer survivors.  As survivors, it’s often understood but less often spoken about that the assault to our bodies and minds as cancer patients extends far beyond our last treatment cycle.

Remission itself brings reassurance and a sense that period of calm and recovery is now within reach. You have been given a second chance to rewrite the rules and try living differently with greater appreciation. In truth, remission does NOT mean you are all clear. Instead, remission the hope that your active cancer treatment is about to be a closed chapter in your life. It means finding a way to move forward while still under routine monitoring for potential relapse.

 Life goes on and relief flourishes after you are told you are in remission. Then, a few months go by and the next appointment looms on the horizon. The cycle of dread and worry repeats. This cycle repeats over and over for the first few months and sometimes up to five years or more after you are diagnosed.

I’ve learned part of living in remission is learning to manage the fluid emotions of joy and gratitude intermixed with the feelings of guilt, shame, anger and fear. Post-cancer life is often interwoven with moments of empowerment followed by a somber reckoning that this way of life has become your “new normal.” There are periods of immense joy and elation that come with the news you are “in remission.” Then there are long periods of waiting and worrying if the next visit to the doctor will bring more freedom or news of a potential relapse.  There are countless daily reminders of what you have been through and the reality of what could be around-the-corner.

Guilt

At times, I’ll be the first to admit I often feel a sense of guilt when it comes from my cancer treatment. Guilty for being able to receive one of the latest advancements in cancer treatment (immunotherapy) and surviving when so many others who were diagnosed after me, some younger than I, have since died. Guilty for going on about my cancer journey long after my treatment has finished. Guilty for not always remembering to be thankful and seize the day. And guilty for all the trouble and worry I put my loved ones through.

Anger

Some people (myself included) become angry after treatment. Some struggle to get past the trauma, while others learn from it and use it as a catalyst to live life in a completely different way. Any traumatic life event that you go through will leave scars and people survive in different ways. Chemo and radiation save our lives, but they also cause a hell of a lot of side effects, including secondary cancers and painful, lingering side effects like neuropathy and gastrointestinal issues.

Feeling Broken

For most cancer survivors, the first year in remission is often the most difficult This is because when you’re in remission, it finally hits you that you literally almost died and spent the majority of the last year fighting for your life. It’s a startling realization to take in and fully process. When you’re going through treatment, you’re in survival mode—too sick and tired to actually realize what’s really going on. Remission lends the opportunity to reflect on the good and the bad. Getting diagnosed and treated for cancer can leave you at times feeling broken, helpless and largely distrusting of your body. In my experience, remission at first turned my survival mode into a state of hyper-vigilance where any unusual symptom made me flip out and almost convinced I was in the throes of a possible relapse.

Cancer survivors are tasked with carrying on with their lives by learning to adapt to a “new normal” that comes with being in remission. We must rediscover who we truly are under all the layers of trauma our cancer treatment may have caused. We must learn to find our footing and move forward amidst the shifting sands of fearlessness and fear, confidence and worry, relief and calm, certainty and uncertainty. Our sense of cautious optimism grows with each disclosure that our cancer has not spread and there is no evidence of disease. Over time, we learn to breathe a little easier, while the fear is always there—it seems to move further and further to the back of our minds.

Addressing and understanding the emotions you are experiencing as a result of cancer or any disease is difficult. It’s painful. But I’ve come to learn and accept it’s entirely necessary to heal. Seeking out community—a therapist, friend or family member, or a support group of others who have experienced similar trauma like cancer—is a crucial step in recovery. I’m hopeful that in time I will be able to transform this horrible, traumatic experience from an endless stressor into a source of strength.

Overcoming Fear with Gratitude

One way I am trying to overcome my anxiety and lingering fear regarding my treatment is by expressing daily gratitude. The latest research in neuroscience shows that when we practice gratitude we are actively rewiring our brains and naturally boosting our serotonin levels. According to neuroscientist  Dr. Alex Korb, all we need to do is simply ask, “What am I grateful for?” No answers are necessary. Just searching helps.  

Some ways to practice gratitude:

  • Keep a gratitude journal.

  • Tell a loved one or a friend something you appreciate about them.

  • Look at yourself in the mirror and think of something you like about yourself.

  • Sit in a quiet place and think about when something went well. How did that feel? Practice that feeling every day for a week.

  • Next time something bad happens consider 5 good things that happened as a result of this event.

  • Write someone a thank you note.

  • Write it down, talk about it, think about it, re-live it, meditate.

 

It has been said that trauma creates change you don’t choose; whereas healing creates change you do choose. There is a great transition from patient to survivor. I believe the journey from patient to survivor begins with patience. We must be patient with ourselves and give our bodies and minds time to heal from all the trauma we have endured. Healing comes moment by moment and one breath at a time.



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Sources:

  1. Cancer Truths- The Teal Society  

  2. '1 in 2 people will develop cancer in their lifetime'- Medical News Today, 2015

  3. The Upward Spiral: Using Neuroscience to Reverse the Course of Depression, One Small Change at a Time  by Alex Korb, PhD